Stella's Story: Part 1
Here is the beginning of Stella's Story: Stella's Story: Part 1
The rest is coming soon!
Genetics
We got our genetic results back yesterday. Dr. Tag called me personally to tell me the results.
Drum Roll..............................They were completely normal!
I let out quite a loud "Praise the Lord!" from my corner "office" (really, it's just a decent-sized cubicle). This news made my day, well, my whole week, really!
It is crazy, though, that what happened to our little Stella was, in medical terms, de novo (purely spontaneous). God obviously had a higher purpose in sending us our little girl. She wasn't meant to stay here on earth, but her memory lives on in us, and we hope to continue to bless others as a result of her death. We would like to continue to help families whose babies are born with heart defects or genetic disorders, specifically. Families who have chosen life for their babies, despite the diagnosis, and despite the odds.
We rejoice in knowing that there is nothing adversely affecting our boys or my sisters. I am amazed every time I see a healthy baby, knowing that God put that little being together perfectly. And even one someone isn't genetically normal, it doesn't make his or her life any less precious or any less valuable in the sight of God. The thought that has comforted me through this time is this: "Stella's body wasn't strong enough to contain her soul."
Stella is the most precious gift that I have lost here on this earth. But losing her has also given me the greatest spiritual gain I have ever experienced (since I came to know the Lord, that is). Because of this, even in the midst of sorrow, I can still say that God is good.
On this side of heaven, I pray that our loss would translate for others into the greatest gift in this life: knowing Jesus as Lord and Savior.
Thursday, December 09, 2010
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Labels:
CHD,
congenital heart defect,
genetic disorder,
genetic testing,
heart defects,
infant loss,
Wolf Hirschhorn Syndrome
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About This Blog
- Jennifer
- This is the story of our daughter, Stella Rose, who went to be with Jesus after five days here on this earth. Stella was born with multiple birth defects due to a severe case of Wolf Hirschhorn Syndrome. Although Stella is no longer with us in person, she has changed us forever. Stella's legacy is my journey on a new road without my daughter, and how God is working in our hearts.
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- Elizabeth Taghechian
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- Sanctus Real Whatever You're Doing
- sibling loss
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- Stellar Kart Born to Be
- suffering
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- Wolf Hirschhorn Syndrome
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