Stella's Story: Part 1

Here is the beginning of Stella's Story: Stella's Story: Part 1
The rest is coming soon!

Phineas Jude

For thirteen days now, I've been more than blessed by the seven-pound-eleven-ounce sweetheart that I've anticipated for so long. 

We agonized for months over what to name him. 

For sixteen weeks, we had the perfect girl's name picked out, and we were 100% agreed on what to call the much-prayed-for, much-hoped-for "her."  Our dreams were dashed even before the twenty-week ultrasound when our sixteen-week growth check showed the unmistakeable turtle between our baby's legs.

I struggled for months with the disappointment of carrying a third son while I watched friends rejoice over the births and anticipated births of healthy baby girls.  I missed my daughter, and more than anything, I wanted another daughter.  Even still, I can't fully reconcile my heart's desire with God's choice to bless us with another son.  Today, I again felt the all too familiar pangs of heartache when a facebook friend announced (after her twenty-week-ultrasound), "Our prayers have been answered! It's a girl!" 

What about our prayers?  We prayed for the same thing...a healthy baby girl.  Were our prayers not answered?  Of course I know little about the ways of God, but I really thought if anyone deserved a baby girl, it was us. I believed God would add another daughter to our family to help us in our healing process.  Why did God not answer our prayers?

I think He did answer our prayers,  just not with "our answer."  One of my Dad's favorite Bible verses is Proverbs 16:9 "In his heart a man plans his course, but the LORD determines his steps."  I still have no idea why God didn't agree with our "plan" to have another daughter, and He chose not to bless us in this way.   During my pregnancy with our little boy, I wrestled with God's determination of our steps.  More than anything, I wanted to be fully accepting of this wrench in my plans...another son and not the daughter I longed for.

And so, I was determined that this little boy scheduled to arrive on November 9th would have the perfect name.  His name had to have a deep meaning which reminded me that his presence in our lives was planned, predestined by God, and not something I could argue with. 

We chose the name Phineas because it means "oracle."  If you look up the meaning of oracle, one of the definitions is "God-given message: a message believed to come from God in response to a request, plea, or petition."  We believe that our little Phineas is God's answer to our prayers.  Was he the answer we would have chosen?  No, but God did answer our prayers.  I don't think it is fair to say that God answers our prayers only when it's the answer we wanted.  I don't pretend to understand why God didn't feel that another daughter was in our best interest, but one of God's many lessons to me over the past year has been to "lean not on your own understanding."  Our baby boy's name reminds me that his birth was not an accident, not something I should regret; nor should I daydream about a different outcome. 

I saw a vinyl quote that I plan to plaster on my wall.  Since I first read it, it has stuck with me, and I purposefully remember it every day.  It says, "Happiness is not having what you want, but wanting what you have."  Amen. 

What I have is a beautiful baby boy whose seven-pound body has been perfectly formed in my womb.  THAT is incredible.  There are no words that can express my gratitude for the gift of this little boy's life...that God has entrusted him to us to hold, to love, and to raise in His ways.  Phineas' middle name is Jude, which means PRAISE.  I chose Jude as a reminder to me to praise God daily for my third son.

Phineas Jude...a message from God, an answer to our plea, and for whom we give God PRAISE.  God who answers prayer.  What better name could there be for our little boy?

Even his nickname, Finn, reminds me that God's plan is better than my own.  Finn means "fair."  Yes, I supposed the connotation of "fair" could refer to color, but I am reminded that God didn't even have to give us another child after losing Stella, yet He did, and our baby boy is perfect and beautiful. 

Thank you, God, for answering our prayers and giving us Phineas Jude.  We praise you for him.

For My Baby Girl - Your Birth Story

Happy 1st Birthday, baby girl! 

It's been a long a painful year here on earth without you.  Today, I look back on October 4th, 2010 with joy and sadness, knowing now that your birth meant that we would have such a short time to be together.

I realize now that I've never told your birth story.  I've relived it so many times in my head, but I've never written it down.  I guess there couldn't be a more perfect day to tell your story than today, huh?

By this time last year, you had already graced us with your presence.  Daddy and I were up at the crack of dawn to prepare for your arrival.  I'm not sure if I slept at all the night before you were born.  I remember laying on my side enjoying every tiny movement, knowing that you were healthy and safe inside of me.  My belly was only as big as it is now, 34 weeks pregnant with your baby brother.  Did you know that you're a big sister?

When Daddy and I left the house, it was dark, rainy, and cool-the first cool morning of the fall.  I held hands with your Daddy; we hugged and prayed.  I remember your daddy pleading with God to let us keep you, for miraculous healing so that we could take you home. 

We arrived at the hospital so early that the nurses weren't ready for us yet.  It was so quiet and still in the prep area, and the nurses were drowsy since they were at the end of their shifts.  It took three nurses to get my IVs set up.  I'm thankful for the third nurse who knew what she was doing.  Somehow, I got to talking with her about the births of your brothers, telling stories of the crazy nurses in Cape Coral, FL, and by the time I was prepped, we were both in stitches.  She was a blessing to me; I was so in need of the comic relief.  I was so scared, but much more for your health and safety than for mine.

Dr. Tag visited to tell me why I had two IVs...one was "just in case" my placenta got stuck in my scar tissue, and they had to do a hysterectomy.  But even though Dr. Tag gave me this scary warning, she also reassured me (like she always does) that she would take her time and take care of me.  I asked her again if I could hold you before going to the NICU, and she replied that as long as you were stable, that was a very reasonable request.

I walked the short but surreal path to the OR.  Dr. Tag hugged me while the anesthesiologist took two tries to place the epidural.  I could still feel my legs as they swung them up onto the table.  It was very creepy having tingling in my toes, and I was concerned that the epidural wasn't working.  But I was told that I was already "nicely splayed open," so apparently it was working just fine.

Just born
Dr. Tag kept her promise and took her time.  She found the source of the pain I had been having since Milo's birth (tons of scar tissue), and cut it out.  It took her nearly 30 minutes for her to get to you.  Lying there, helpless, it seemed like an eternity before you were born.  Finally, at 8:05 AM, Dr. Tag pulled you out, and you gave two perfect little cries.  You didn't wail like your brothers, but your lungs were definitely working.  Those two cries were the only time I would hear you make any sound at all.  How I wish I had recorded that moment so I could hear you once again. 

Daddy holds you for the first time
Daddy grabbed the camera and started snapping away so I could see all your first moments later.  He did a great job with the camera.  I am still impressed when I look the pictures of you right after your birth. After the nurses finished their initial assessment, they wrapped you up and gave you to Daddy, all four pounds six ounces of you.  For a brief moment, I got to see your beautiful little face.  I was overwhelmed with incredible love for you.  Daddy and I kissed you on the nose, but we weren't allowed to hold onto you.  The doctors swept you away to the NICU.  Daddy went with you while I went to recovery.

I can't even begin to explain how hard it was to go to the recovery area without you.  At first, I was by myself there, but then other mommies were wheeled in holding their newborns.  I could hear their squeaky cries and suckling noises as I waited anxiously for Daddy to return from the NICU and update me with your status.  Daddy came back and told me that Egleston had already been contacted, and a bed was open, so you'd probably be leaving today. This meant that I wouldn't be able to be with you until I was discharged on Wednesday.  The doctors told us that this scenario was the best case for your survival. 



Nana meets you
 Granddad, Nana, and your brothers were on their way to the hospital to meet you.  Nana got to meet your when your eyes were open, when you were fresh and new and full of life.  She held your little fingers and felt instant love for you. 


Ely meets you
The photos of you with your brothers right after your birth are some of my favorites.  Ely and Milo were SOOO excited to see you.  The looks on their faces were ones of absolute joy.  It was very hard for them to understand why you were so sick, though, and why they couldn't hold you.   I wish they could have spent more time with you and gotten a chance to hold you, but you were too fragile.  Even still, I am so thankful that your brothers got to meet you right after you were born.  One of my fears was that they wouldn't have the chance to meet you alive.

Daddy went back and forth from the NICU to my room until it was time for you to be transported.  I was so worried that they would take you away without me getting to see you. Gazing at you from flat on my back during the C-section didn't exactly allow me to take in all the details of your tiny face.  After waiting in anticipation for hours, the transport team finally wheeled you into my room in your isolet.  I remember losing my breath for a second when I first saw you, so small and helpless and uncomfortable.  I just wanted to scoop you up in my arms and hold you forever and protect you against all the harm in the world.  It broke my heart saying goodbye to you. 


In your transfer isolet
 Daddy followed you to Egleston and stayed with you for most of the day on Monday, your birthday.  Daddy wasn't allowed to hold you, but he was there with you, holding your hand.  That night, he brought me pictures of you.  I saw that you had been hooked up to a ventilater since you had stopped breathing in the ambulance.  It was so heartbreaking to see you, a tiny little baby, hooked up to so many machines when hours before, you had been breathing on your own, a sweet littleborn who deserved to be held and cuddled and kept warm by her Mommy's skin. 

If I could turn back time, I would have fought harder, baby girl.  I would have fought harder to have given you a better quality of life for the little time we had with you.  I'm sorry you endured so much and suffered so greatly. I wish I could have had you in my arms for the entirety of your short life instead of you having all that medical crap hooked up to you. 

I knew you weren't meant to be here long, little Stella.  I only wish I could have spent your birthday, October 10th, 2010, with you in my arms, just like I wish I could spend your birthday with you today.  In my heart, you'll always be my baby girl, no matter how old I become.  It was indescribable joy to meet you, see you, and touch you, and I was always ache for you on your birthday AND every other day that I am separated from you.  I love you, baby girl, and I miss you more than words will ever express.

Happy Birthday.

Love,
Mommy 


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About This Blog

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This is the story of our daughter, Stella Rose, who went to be with Jesus after five days here on this earth. Stella was born with multiple birth defects due to a severe case of Wolf Hirschhorn Syndrome. Although Stella is no longer with us in person, she has changed us forever. Stella's legacy is my journey on a new road without my daughter, and how God is working in our hearts.

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